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News from January 2026

EGM in PCH on 7 January 2026
APPG appoints Danny Beales MP as new Chair of the Group
8th January 2026
The APPG on Access to Medicines and Medical Devices held an Extraordinary General Meeting yesterday, where Danny Beales MP was elected as Chair of the Group.
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Latest news

EGM in PCH on 7 January 2026
APPG appoints Danny Beales MP as new Chair of the Group
8th January 2026
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APPG sends letter on Early Access Programmes for Duchenne UK
APPG Writes to the Department on the Early Access Programme to Givinostat Treatment for Duchenne Muscular Dystrophy
7th November 2025
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APPG send letter to the DHSC on newborn screening
Chair Freddie van Mierlo writes to the Department on delays in newborn screening for Spinal Muscular Atrophy
7th November 2025
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