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NICE update on medicines thresholds
Press Release: NICE CEO Prof. Jonathan Benger and Director of Medicines Evaluation Helen Knight Meet with the APPG
4th March 2026
The medicines threshold is the benchmark NICE uses to assess whether a new treatment provides sufficient health benefit relative to its cost to justify routine NHS funding.
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APPG send letter to the DHSC on newborn screening
Chair Freddie van Mierlo writes to the Department on delays in newborn screening for Spinal Muscular Atrophy
7th November 2025
The Access to Medicines and Medical Devices APPG has written to the Health Minister to raise concerns about ongoing delays in the UK National Screening Committee’s review of newborn screening for Spinal Muscular Atrophy (SMA).
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APPG sends letter on Early Access Programmes for Duchenne UK
APPG Writes to the Department on the Early Access Programme to Givinostat Treatment for Duchenne Muscular Dystrophy
7th November 2025
The Access to Medicines and Medical Devices APPG has written to the Health Minister to highlight ongoing challenges with the Early Access Programme (EAP) for Givinostat, a life-changing treatment for Duchenne muscular dystrophy.
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APPG Session on Value Based Procurement
APPG evidence session explores value-based procurement for medical devices
22nd July 2026
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The Treasury commits to a new approach to VAT policy on medicines donated through Early Access Programmes
17th July 2026
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APPG VAT Letter
Chair Danny Beales MP writes to the Treasury on VAT loophole affecting access to life-saving medicines
1st July 2026
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